What is extra-pelvic endometriosis?
Endometriosis can be found outside the pelvis and symptoms depend on location.
Read resourceEndometriosis Knowledge Centre
Complex and Extra-Pelvic Endometriosis
Endometriosis can involve different organs, tissues and body systems. Learn about complex and extra-pelvic symptoms, specialist input and multidisciplinary care.
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In this section
Diaphragm and thoracic endometriosis
Chest, shoulder and breathing symptoms around the cycle should be taken seriously.
Read resourceBowel endometriosis
Bowel symptoms may need specialist assessment and sometimes colorectal input.
Read resourceBladder, ureter and urinary tract endometriosis
Urinary symptoms and ureter involvement should not be ignored.
Read resourceSciatic and nerve-related endometriosis
Nerve-like pain, numbness or weakness needs proper assessment.
Read resourceAbdominal wall, belly button and scar endometriosis
Cyclical pain, swelling or bleeding from scars should be checked.
Read resourceEndometriosis and organ involvement
Different organs may need different specialists.
Read resourceQuestions to ask if complex endometriosis is suspected
A practical question guide for complex symptoms or multi-system disease.
Read resourceFeatured next step
Endometriosis Care Directory
Explore endometriosis providers, clinics and services, and prepare questions to ask.
Prepare for Appointment Tool
Organise your symptoms, questions and concerns before speaking with a doctor or specialist.
Keep exploring
Related sections
Symptoms and Body Systems
Explore symptoms that may be linked with endometriosis, including pain, bowel, bladder, fatigue, fertility, nerve-like and symptoms outside the pelvis.
Open sectionTreatment and Surgery
Learn about common treatment and surgery language, including pain management, hormonal options, excision, ablation, recovery and questions to ask before making care decisions.
Open sectionFind Specialist Care
Learn who does what in endometriosis care, understand different specialist roles, and use the Endometriosis Care Directory to explore providers and services.
Open sectionSafety note: This information is for education and support only. It does not diagnose, provide medical advice or recommend personal treatment. Always speak with an appropriate healthcare professional about your symptoms and care options.